Families impacted by ALS comprise the community most likely to support research necessary to cure the disease.  Most people don’t live with ALS long enough to advocate for themselves, and today it is not possible to survive ALS.  So it is up to those with a connection to this disease to invest time and resources in pursuit of a cure.  

There are many organizations that support research, patient care and advocacy in the ALS community.  Families of newly diagnosed people most often prioritize caring for their loved one over an immediate and active role supporting an ALS organization.  This makes sense, the disease can be all consuming not only for the patient, but also the caregiving family.  

Path to a Cure is an event to ensure those with a connection to the disease understand where progress is being made and where help is needed.  This balance of sharing good news and a call for more resources is the best formula for engaging people with the connection and means to help.  The event itself will bring thought leaders from ALS research, patient care, advocacy and the family experience together to discuss the state of ALS.  This discussion is not targeted at an academic or clinical audience, though both will be in attendance.  Our audience will walk away with a clear understanding of what is happening and where they can make a difference.